Apurva helped move Amaey out of ICU and down to the Oncology unit yesterday around 1pm.
Thursday, November 26, 2009
Moved down to 1 North
Apurva helped move Amaey out of ICU and down to the Oncology unit yesterday around 1pm.
Wednesday, November 25, 2009
Amaey in ICU
Tuesday, November 24, 2009
High fevers
Monday, November 23, 2009
Hospital Stay
My parents
Monday, November 16, 2009
Hospital Today
Monday, November 09, 2009
2 of 8 Methotrexate
Saturday, November 07, 2009
Friday CBC
Monday, November 02, 2009
IT
Monday, October 26, 2009
Home School
Amaey is home
Saturday, October 24, 2009
Guess who ate today
Family and Friends
No fever
Friday, October 23, 2009
Amaey in the hospital
Friday, July 31, 2009
Uncle Jed’s Once-Daily Power Green Shake
Raj sent this recipe to me couple months ago. I try and make this shake as often as possible. Amaey is not a fan of it so it makes it a little hard to make it everyday. However, everyone in the family drinks it now and that is a really good thing. Amaey watches everyone gulp it down so he cannot really complain.
Recipe makes 2 full glasses of Power Green Shake
Handful of Raw Spinach leaves with its stems cut off
Half a handful (a cat’s mouthful) of Fresh Wheatgrass
One Fuji Apple cored and sliced (leave skin on)
One Cup of Filtered Water
Quarter Cup of Fresh Apple Juice
One full scoop (2 tablespoons) of Vanilla flavored Whey Protein Powder (with no
dairy or sugar)
One Tablespoon of Greens Powder (with MSM)
Half an Avocado
Put the above ingredients in a Blender and liquefy it. The more liquefied the better. I sieve half of the shake so that it goes down Amaey's throat easy. He tends to gag easily. Sometimes I also add more apple juice for him.
Pooja's juice
Day 3 in the hospital
Thursday, July 30, 2009
Hospital week
Amaey's new treatment plan
Sunday, July 26, 2009
Waiting room
Thursday, July 23, 2009
At the clinic
Sunday, July 19, 2009
January is gone and June is here
After enjoying a month of cancer free Amaey we got the news we were really not hoping for... "a relapse". On March 23 Amaey had a relapse of ALL. We started treatment right away. Now he is on an intense 2 year plan. 3.5 + 2 = 5.5 years.
Monday, February 02, 2009
Time to celebrate. Come one. Come all!
We asked Amaey if he had any special requests for the party, if he would like a theme, a clown, a
So we did exactly as we were i
It was a simple, fun party with a small band, hot quesedillas, sangria, and many more things to eat. A beautiful cake from Masae Bakery in Berkley. Beads to make take home gifts. Lots of love and laughter.
Tuesday, January 27, 2009
End of Treatment!!
Later we went to the Sharma house to celebrate with Izzy and then to Sino for a celebratory dinner. Finally around 9pm I took Amaey to the Moussa residence. From there I took Gabriel and Amaey for ice-cream. This was a plan concocted by Amaey. The last day of treatment was carefully choreographed by Amaey and we had to make sure we did everything. Frankly, we would do anything to make this all happen. This was a special day for Amaey and he deserved to get what he wanted.
Wednesday, January 21, 2009
Last Chemo
Jan 20 was also a historic day in the Shah household, it was Amaey's last chemo day. We are getting there for sure. 1 more week and on Jan 26 after his procedure they will stop all his meds.
On another note, today Kids and Art got nominated, along with several other individuals, to participate in the Man and Women of the Year campaign organized by the Leukemia Lymphoma Society.
Tuesday, January 06, 2009
Happy New year!
Saturday, November 08, 2008
Amaey is 6
We celebrated it in small bits. Few days before his b'day we surprised him by inviting his special buddy Gabriel and Christopher, Elias, Andrew and of course Arjun to the Lego store. After being totally surprised and thrilled to see all his favorite people at his favorite store they checked out all the new clone wars lego sets, checked out every inch of the store, played with some of the swords, built some lego contraptions and once they were hungry we walked over to CPK and had his favorite pizza dinner.
The night before his b'day, I was working and Amaey comes and sits next to me around 11:30pm. He did not seem sleepy at all so I decided to offer him a midnight snack and keep him up until midnight so that I could sing Happy Birthday to him at midnight.We watched some TV, ate snacks and looked at animated birthday cards online and sang Happy Birthday at midnight (at least 10 times) and then ... On his b'day day we had some of his super special people over for dinner Aditi and Rita, Raj, Sid and Nooni. A special night where he decided the menu (cheese quesedilla, guacamole, chips, spanish rice and black bean soup) and cake.
It's beautiful to see them grow.
Wednesday, June 27, 2007
Disneyland Summer 07
We went to Disneyland on June 18 on the first day of kids summer break. This summer since Amaey is doing well we decided to hit the jackpot and take all the vacations and family travels.
We drove to LA and spent 1 day at Disneyland and the other at California Adventures. I usually am a snob about going to Disney but this time we planned it such that no one felt burnt out and the kids were so well behaved that it was a wonderful family vacation.
The 3rd day we went to Camarillo. Our family loves the sand and sea and what better place than Camarillo. Seriously... the entire beach was to ourselves, we had a picnic basket full of goodies and lots of sand toys. The boys went walking on the beach and collected a lot of shells and rocks. Arjun, Amaey and Apurva built a beautiful sandcastle, our family tradition.
While Amaey and Apurva took a nap Arjun and I walked the beach and looked for crabs and climbed some rocks. Before we realized we had spent the entire day at the beach and were really satisfied when we hit the road to drive back home.
The most amazing thing-- Amaey jumped the waves. He went all by himself to the water and stayed there. This is unlike him because he used to cry like crazy at the sound of waves crashing the shore and would run as far as possible when the waves would come in.
Update on Amaey
Amaey started the 2007 year really well. However, towards the 2nd week of January the school started calling us to inform about a strep outbreak or potential infection lurking. There were weeks where I would drop him and bring him right back beacuse of some infection or the other. Amaey kept getting colds that he could not shake and would extend into a bad cough.
Around Febuary Amaey got really sick we had to take him to ER. Apurva stayed with him the entire night. The hospital was worried about Pneumonia so they did a lot of tests.
Finally they let him come home around 5am. It was a boderline Pneumonia infection. This is when we decided to take him out of school. We felt that the entire school going experience was being dilluted with all the illnesses and irregular dropoffs.
I signed him up for soccer, mad science, art and music. This helped him meet other children without being in a confined environment for too long. This was definitely the best thing we did for him. He flourished with all the social interaction and became independant as well and is now looking forward to Kindergarten. Yup... Amaey starts KG in September.
He has made some wonderful friends this year. He met Gabrielle at art class and they had an instant connection. They ended up in the same science and soccer class so that was really fun. He also took music with his friend Dylan and has had playdates with Peter. He sure is blessed with a big smile and a warm heart.
Amaey has also become really close to Arjun. They spend every waking hour together and it is really special to see their bond. When Amaey has his 5 day challenge Arjun gets worried and if Amaey cries alot Arjun will start crying because he feels bad.
Amaey has found a new passion for Lego thanks to his brother and he wants us to take him to LegoLand for his birthday instead of a birthday party.
He is becoming an avid listener. If you read books to him he will stay there snuggled up with you for hours. He loves ears... maybe I should say he has a fetish for ears. When he is sleepy he will start playing with his ears however he prefers Apurva's ears the best. But recently their friend Sid took a runners-up place next to Apurva and it is really cute to watch them.
Camp Okizu 07
As we stood in line it started pouring-cold rain and we decided... what's the worst that can happen? We all had such an amazing time. Amaey did the zipline all on his own and that was quite an accomplishment. Arjun moved on to being tarzan and climbed a tree and swayed off to other trees while Apurva decided he wanted to cross trees mid air.
We decided to leave that night because it was really pouring and did not seem like it would stop the following day.
We are already looking forward to our next year at camp okizu.
Team in Training
I joined TNT on Feb 07 and trained for the half Marathon. My event was on May 6 at the Avenue of the Giants in Humboldt county. It was a wonderful experience. Both Apurv and I felt that we did not have a choice in inviting ALL into our life but now that it is an integral part we might as well learn more and do whatever we can. The pictures below are from (top to bottom) 15 miles, 12 miles which was our midway madness and Arjun and Amaey gave out medals to everyone. Amaey was also the honoree of the day, 10 miles and 6 miles respectively.




When I started the training and completed 2 miles the first 2 weeks it felt like a lost cause to try for 13 miles. However, the training was really good and the coaches and mentors and team leaders were all genuinely vested in the event. I finished my event in 3hrs and 5 mins and felt really wonderful to have the 3 boys at the finish line.
I have signed up for the next season and am planning to walk-run the Nike half Marathon on October 14 and Santa Barbara half on Nov 3. Will keep everyone posted.
Tuesday, January 09, 2007
January 9 2007
Apurva and I went out for dinner with friends on New Year's Eve and the kids were home with 2 other kids and our nanny. I did not stare at the phone, did not have it on my table while eating dinner. It was cool. I just checked on them once and that was it. Unlike last year when our family celebrated New Years Eve in ER and did the countdown witht he ER docs.
This year tested us as a family. We were stretched in every direction and as life usually goes... nothing else slowed down. Arjun still had school, activites, homework, Apurva still had work, late nights at work and deadlines, sinks filled up, light bulbs blew off, yard needed maintenance. On top of this we seem to have taken the treatment in our stride. It's part of our TO DO list.
Every monday is a busy day, Pick-up the boys, take Amaey swimming, after I change him at the pool I put his Embla cream( a numbing cream) on his arm and drive to the hospital for his blood test. From there we go for Kumon and then we get home. A normal day huh!
No complains, seriously. I would rather have it that way instead of making it a big production everytime we take him to the hospital.
Saturday, December 09, 2006
Nov 22 2006
This Thanksgiving was normal. We did everything as planned. I kept staring at Amaey, checking his forehead for fever, I kept waiting for things to get wrong. But the weekend went beautifully. We had really wonderful family time.
It's been a year since I started this blog. It has been a year since Amaey was diagnosed and is on treatment. It has been a trying path but one that has taught us a lot.
Wednesday, October 04, 2006
School
He has done really well in his first month. He does get chemo once a month and steroids at the same time so that slows him down a bit. But compared to last year where he was happy for 2 days out of 7, now he is happy for 3 weeks out of 4.
His hair is all back and we had to go and get his first haircut as well. He was really thrilled to get his lollipop at the end. Can you imagine not getting a lollipop for almost 9 months??? That's major withdrawl.
Camp Okizu
In the afternoon we did the zip line, Arjun climbed redwood trees. I climbed a tall tree and mid air crossed from one tree to another and belayed down and Apurva was our tarzan jumping from one hoop to the next on top of a tree. Amaey sat and watched his crazy family.
Later the first night they had a camp fire and the kids had a blast singing campy songs and eating smores. Second night they had a dance party. Amaey and Arjun danced till they dropped.
The best part was sleeping outside under the big tall trees. It was beautiful. The weather was perfect...
What amazed us was that this organization runs on volunteers. Except for maybe 2 people that are on a payroll they had 30+ volunteers of all ages. We saw a lot of teenagers. Some were cancer survivors, others siblings off. A few grandparents in the midst as well.
Wednesday, August 16, 2006
Am I going to be blonde
I don't know what made him think about blonde hair but just visualizing his dark face and features with blonde hair does crack me up... Some day as a teenager I have no idea what this boy will end up doing. But on my watch I'd say the new set of hair looks pretty darn black to me.
Port is out
He still has stiches and a small bandage. But once that will fall off I'm sure Amaey will feel the difference. Apurva took him for this procedure and he told me that Amaey was amazingly brave and did not cry when he woke up from the sedation. I do not know where he gets his strength from but it sure is wonderful.
Wednesday, August 09, 2006
First vacation
Also spending time with his aunt, uncle and cousin sister was quite a thrill. Houses in Detroit have basements and that was a super novelty for him. We did have to go and get blood test done while we were there but it was relatively painless. Overall he did amazingly well healthwise.
Amaey's Birthday party



We celebrated Amaey's 4th b'day on July 16. It was wonderful to see him enjoy with his friends amidst music, singing and parachutes.It's really rewarding to see how well he is doing.
He goes to the clinic every week for blood test. After the test results are back the doctor calls and based on his results we give him his oral chemo tablets. Once a month he goes in to the clinic for Vincristine which is a chemo they inject through his port. He also gets his oral tablets and a 5 day dose of steroids. This usually knocks him down for 5 days. He is usually slow, highly emotional, indecisive and low after this. Every 12 weeks he has a spinal tab procedure and for this he has to undergo anesthesia.
I'm sure all of this must sound too much. But, from where we were... this is very easy to handle. Much more manageable and normal.
Graduation
Friday, May 19, 2006
Over the hump
The conversation with the doctors made it seem that life should be back to some form of normalcy. Amaey can go back to school fulltime, we can start his swimming and soccer... the three things he really loves.
So this made me feel like our summer will be less anxious.
I want to take the wait and see attitude. I'm not running out and screaming with joy and nor am I already thinking about what should I be doing now. I need to see how he does in this new phase over the next few months. Settle into the new schedule and then start him off in preschool and see how he does with a normal life and only then will I start asking what about me...
Because everytime I ask the me quetion and brave myslef to take up projects something brings it to a halt. I'm a bit tired of picking up and starting fresh.
We haven't brought out the champagne and celebrated the new phase yet... but I must say there is a sense of relief and now I will have to learn to loosen up a bit.
Thank you all for staying so close to us and helping us get through our really intense period in life. We appreciate every single gesture, every helping hand and personally I thank everyone that listened... and everyone that simply filled in all the gaps in my day-to-day life.
Monday, May 08, 2006
In the hospital
Since he had a bad cough they were worried about pneumonia but a chest xray rulled that out. They ran a bunch of tests on him to rule out all other infections and luckily all came back negative. I just came back from the hospital and he is looking really good. No fever since yesterdy so that is a good sign.
Once his counts are back up they will let us go home again. The main doctor that has been assigned to Amaey's case looked at me and said... hey we haven't seen you here since his treatment so you are doing really well. Frankly this is routine for his treatment for kids to end up with infections and fevers and then be admitted.
The fact that we are so close to the hospital, have such a good team of doctors and Amaey is really chugging along well is a good sign.
Sunday, April 23, 2006
No hair but still gorgeous

Amaey is in the last week of his delayed intensification phase.
He seems to be doing well. He does not have an appetitie at all but other then that he seems to be holding up real well. He had started losing chunks of hair and that was it... I went and got it shaved off so that we do not despair everytime we see his pillow or clothes full of hair.
I think he likes the look too.
Wednesday, April 19, 2006
This week
Saturday, April 15, 2006
He smiles
We have noticed that his hair is falling like crazy. If I run my hand in his hair chunk of hair will casually fall off. But he thinks it's funny when I say he is going to have a really cute bald head. He thinks it's really silly of me. He says.... Ma you are really silly billy.
Thursday, April 13, 2006
My day with Amaey- by Arjun

Amaey isn't feeling that good and he cries a lot now. This makes me feel sad.
Amaey I hope you get very better soon and get very happy.
Today I went to his hospital and I saw everything. It was very nice. I liked going there. He was so strong when he did his bloodwork. And I was making him breath. I was very impressed.
Then we went to the clinic. We had to wait a lot there. I played games and it was very fun. I liked doing that. Then we went in the room where I met his doctor. His doctor was really nice. When the doctor was with amaey I made 2 nice nice drawings and I read a very long book to Amaey.
Then we went to lunch. And then we went to get cars our hotwheel cars. It was a special day with me and Amaey.
Wednesday, April 12, 2006
It is hard
Amaey had 3 weeks of Vincristine and methatrexate and Peg and Dexa... you name it and he got it in the past 3 weeks. He started out really well. The first week he was great I also took him to his music class. Second week he was slowing down but he was still in good spirits. His eating habits were crazy as we had expected but he wasn't really eating much. And he did not wake up at night for food. Yes he did ask for milk and He would get wet with perspiration (due to the meds) so he would come and sleep with us.
This time he seemd put off with food. He would ask us to cook up cuisines but he would look at it and smell it and be totally off. He would just stay in his chair and put his head down and rest. When he would eat it would be for the entire day with some sleep breaks in between. But 1 or 2 bites of every food, that's all.
from March 29 to April 4 Arjun was down with fever. 102-104 temp. non-stop. And that was the week my parents left to go back to India. I must admit it has been an emotional roller coaster for me. It took all of Apurva's and my strength to not loose it on the kids. They were so needy, so insecure. We were on 24/7.
Luckily Arjun is much better now and with spring break he has got his needed rest and back to normal. And that is great because he is my best helper. Such a wonderful brother.
This morning he sat down in the TV room to watch a show with Amaey and Amaey made him leave. Arjun went to take a nap in the bed with Amaey and Amaey kicked him out of bed. Arjun was really hurt. He came out crying. I could see that he was genuinely hurt. I sat down with him and had a really long chat. I explained what Amaey was going through. Reminded him how he felt when he was sick and just imagine feeling infinity times more bad... I think that helped him because after that chat Arjun made sure his brother had everything he needed.
To add to his mood bouts, uncontrollable crying moments... Amaey has developed mouth sores. They started out lite and in 3 days took over his entire mouth. It has been particularly hard for him. He cannot eat, does not feel like drinking and sometimes can't gulp. He wakes up crying and he can keep crying for hours because he can't stop himself. He is really slow and cranky. Sometimes I feel like there is another person in his body.
He is a kid that likes routine. He has to take 5 tablets twice a day. Fine now that it is routine he can do that without a fight. Now I add magic mouthwash and warm water gargle and no solid foods... that's it all hell has broken loose. He wants waffles and toast even though he cannot swallow. How do I explain to him that soup and juice and warm drinks are best for him.
However, since this evening I think he gets it. He gets it that I'm working for his good. That yogurt or hot choclate might be better than bread. Oh good.... I'm so glad he gets it because I was about to breakdown.
This thursday we have a break from his treatment. So hopefully his body and mind will get a break before his next 3 week intense phase begins.
Wednesday, March 29, 2006
Race for Life
http://www.raceforlifesponsorme.org/forthosewelove
Anokhi and Mona... it is wonderful that you are participating in this event. Cancer is such a broad term that I never thought about the intensity, the age range that is affected and the lives of the families before. This was something we talked about
and then moved on.
When my mother-in-law was diagnosed with Ovarian Cancer I had just moved from NYC to SFO. Still looking for a job after my masters which meant I was a dependant and that word hurt me a bit. Having worked to pay for my very expensive art school in NYC and having left a really good job there my new life in SFO felt a little strange. I realized the frustration of all the HI-B's (dependant spouses) if you do not work you do not have friends, maybe do not have a car which means you are completley dependant and add a new place to the mix.
Around that time we found out that my mother-in-law had cancer and we went to India. On the day I was leaving for India I got a job offer. They needed me to start work in 10 days... I was so torn between my daughter-in-law duties and my much needed independance and ego boost. I had to come back in 10 days and that fact bothered me actually up until yesterday. i.e for 10 years.
Yesterday I was thinking about this and I realized that circumstances pull people in different directions. As a newly wed and a recent grad my entire lifes focus was in proving to myself that I was capable of getting a job and becoming independant and doing what I really enjoyed. We were still in our Honeymoon phase so the insecurity of a total life shift was scary. For so many years everything else was on hold since I was a starving student. A sudden turn of events was totally not a matter of discussion.
In comparison to 10 years back, when Amaey was diagnosed I took -2 seconds to tell Apurva that I was quitting. A job that I so loved. I was more stable in my life. We as a family were more solid and grounded. Our priorities were in order and we respected each other.
Circumstances can definitely test people and relationships.
Looking around me I feel completely blessed that we have such a strong family and wonderful friends that have looked out for us, been there with us. I have known of people that loose friends and family with each test that life puts on them... I'm thankful that we have created more bonds with each difficulty that life has showered on us.
Anokhi and Mona, we wish you two a good walk and I hope you collect the money for your charity. Thanks for walking even though you should medically not be doing so.
Monday, March 27, 2006
Day Hospital
Maybe he feels in control when he knows what is going on.
He has slowed down with all the new chemo drugs and steroids. All day long we hear him say he is tired and he has a headache or bodyache. But he can't seem to stop himself... he keeps running after Arjun and suddenly pants and slows down.
He is also going into this phase a really strong boy compared to when we started the treatment in November. We are lot more educated about the phase and side effects as well. Regardless, he seems to be in great spirits so that really helps.
Chicken Pox
At 8:15am just as they were taking him into the room for a procedure I got a call from my friend, her 2 children were spending the evening with Amaey and Arjun the night before. She thought her daughter had just developed Chicken pox.
My heart stopped beating. I suddenly felt like a big killer bug on the Pediatric Procedure Unit. All these immuno supressed kids around me... I went and told one of the nurses... after closing the window on me she came back and assured me after consulting with a few more people that I was not contagious. If It was between day 7 and 12... they would have shooed me out of the hospital before i could have blinked.
Now I'm worried about Amaey. He was going to start intense doses of chemo. I called my friend and every hour I tried to get a better idea of the symptoms... their pediatrician could not say for sure if it was chicken pox. We needed to wait 24hrs before we would find out.
When we get home I made the mistake of looking online about chicken pox in leukemia. I tell you that was the dumbest thing I have ever done. This was the first time I realized that I had the capacity to worry to such an extent. Next day morning we still do not know. It's friday morning and I really want to get a sense before the weekend. Finally at 11:30am My friend calls and we find out that it is not chicken pox. phew!!!
All this time we were so cautious about cleanliness, washing hands, our social engagements... and now just a day before his intense phase was to begin I had invited 2 lovely children home and had no idea that it might be fatal for Amaey.
Thank god it was just a scare.
But that did get me thinking that we cannot control life. We cannot control destiny.
This does not mean I will let loose and let my guard down...
I could here it in my parents and my sister and my sister-in-laws voice... How could I let this happen. All I can say is that, I cannot control everything. know I'm doing my best... and that thought has relieved me of the constant guilt...
Monday, March 06, 2006
UC Berkeley survey
She had food portion sizes, drinking glass sizes. I did not have answers to all the questions and some of them might not have been super accurate because I do not remember if I drank 2 glasses of wine or 5 glasses of wine 3 months prior to getting pregnant. And I definitely do not know how many servings of fruit Apurva consumed in his life up until now.
This survey did feel like a needle in a haystack.
My question to her was... I keep hearing environmental causes. I said, I come from India and in my 22 years that I was there I must have heard of 2 cases of childhood leukemia... In a country that is over populated, there are no smog tests. Sure cases might not be diagnosed or there might be many other reasons... but still what could be so wrong witht he environment here?
She did not have an answer.
Sunday, March 05, 2006
March 5 2006
We go to his music class every tuesday and school whenever weather permits.
His next phase called Delayed Intensification starts end of March and will last for 8 weeks. The doctor has warned us to brace ourselves for that phase since they will be giving him dexamethasone for 21 days and he will get 2 new drugs. We feel we are less anxious and better prepared now so it should be OK.
My parents will leave by end of March so it will be the 4 of us for the first time since Amaey's diagnoses. In a way we are looking forward to that. As a family the four of us need to chill and bond.
We do feel really blessed to have such a wonderful family who came to our support when we were in need.
I'm settling into motherhood as well. I'm quite enjoying it. I'm involving myslef more in Arjun's school and have finally taken up the much needed home decoration projects. I cannot get over the irony of life though... when one is making money one does not have time to spend it and when one has all the time in the world to spend because they are not working anymore... they need to tighten up.
My parents say this is part of life. They went through such phases much earlier in life when they had to move from the village to the city and then put kids through school, take care of relatives, family, parents and the ever needy neighbors and distant relatives. They say that our responsibilites, nowadays, are shrinking thus whenever something comes up it is magnified.
Monday, February 06, 2006
Amaey's Montessori
I slipped out when he was engrossed in his work. I had my cell phone glued to me, kept adjusting my ringer my ringtone. Every 20mins I wondered if I had any missed calls but there was nothing. Amaey was OK afterall.
I went to pick him up at 11am and all his teachers said he was absolutely fine. Amaey's big smile told me he was very very happy. As we walked to the car I asked him if he had a medium kind of day and he said, "No it was not medium it was really good".
I must credit the Montessori, it's director and staff for our willingness to send Amaey back to school so soon. They have been the most amazing people I have come across. We will send him based on his energy level and the weather. Definitely two days a week for now and if he is really holding up maybe 3 days.
Today was a big turning point in Amaey's treatment. The fact that we sent him to school, we let him be out in the world... alone... He must be doing better.
Saturday, January 28, 2006
8 weeks of honeymoon
He had 3 questions for the doctor when we went in on the 26th--
- when can i start going to school
- when can i go to disneyland
- can i go to coyote point museum?
The doctor said school is a great idea and museum is fine as well however we will need to wait on disneland for a while.
I have started a music class with him and i took him for a visit to his school last week. He was really overwhelmed when he went there. All the teachers and children were genuinely happy to see him. I guess he wasn't expecting special attention so he just shyed away and was glued to my feet the entire time.
If anyone saw Amaey right now there is nothing in his persona that would make you feel that he is sick. He is not neutropinic anymore so we can see friends and family and take him places. Act as normal as we can. It's nice to have this respite. However his temperament is something else. I do not know if it is 3.5yr tantrums or the medicines. I'm sure it's a little of both.
Now that things are setteling a bit Arjun is showing signs of adjustment. He gets upset at Amaey, complains that he is not getting enough attention and wants his alone time.
As for myself... I used to get more done when I was working. I'm convinced that it takes a different type of person to be a stay at home mom. Am I that person? I do not think so. Can I be that person? I guess I will just have to learn on the job and find out.
Monday, January 09, 2006
Happy Bunny
Arjun's school has started so life got busy again.
Amaey is doing much much better this week. He is lot more energetic. Still gets tired and can't walk for too long but we did our first park outing and he took his tricycle to the Ryder Park.
He is quite moody still. One moment he is happy and the other minute in tears for something unrelated.
Appetite... oh dexamethasone where are you!! never thought I would say that. But ever since they have stopped his steroids he is back to his normal weight(which is good) because Amaey does not feel like eating anything. We had created a menu for him and all the foods that he use to crave he totally dislikes them now so we are working on a new menu now.
That's fine though because hearing him chat like a chatterbox and play like a happy bunny is beautiful.
Sunday, January 01, 2006
Happy New Year from ER
Amaey had fever off and on since late afternoon. At 10pm we called the doctor and they told us to take him to ER.
The four of us decided to stay together and celebrate New Year... wherever it was to be.
They have drawn blood and we will be here for couple of hours until they decide what caused the fever. The new Pediatric ER at Stanford is quite a treat for kids thats for sure. The boys were really busy playing video games and watching movies. Amaey's room is equipped with 2 screens... for the kids it was exciting to be up until midnight and hear the countdown into the new year... who cares if it was in ER.
Well 2006 has rolled in and I must say it is going to be a year of family, togetherness and sharing.
Warm wishes to everyone for 2006. Wish you all a very warm and peaceful year from our family to yours.

