However, I was on the edge. I can only speak for myself... Amaey needed his meds at 8:30 and 11pm and then at 7am and 3pm. We had to take his meds out of the fridge 30mins ahead of time. I seriously could not sleep for those days. Being responsible for your child in this way is hard. I was a nurse, sanitizing everything, flushing him and pushing meds through his port. I kept worrying that if I do something wrong he could get an infection. The night I gave him his last dose, I slept like a baby. It wasn't a hard thing to do but for some weird reason there was so much anxiety.
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