Thursday, September 29, 2011

Amaey, our Darling Amaey

9 year old Junior Scientist

The periodic table was his bible

Kept his 12 yr old brother in check. Advised him on what to buy, how to play his stakes on lego universe. Scolded him for spending too much money. Loved and idolized him more than anything. Arjun was the only person that could put a smile on his face when he was down.

Pa had the best ears, was the best cook, best at Math. But no dancing please, he had to draw a line there.

Teachers, his agents W, Q and C were his lifeline. He looked forward to them with the need of an addict.

Books, we couldnt keep up with him. We should have moved the bookstore in our garage. His books took him places he'd rather be at.

Music, oh music was his soul. He could groove and move. His piano took him on musical journeys, the melody fed his soul.

His friends, how loyal he was to them. They were his soulmates, his brothers in arms.

His home was his safety. The sofas for cuddling with us, and concocting mischievous plans with his brother. The fireplace for reading next to. The backyard, his kingdom for sword fights and decadent BBQ's. His room was his palace where he loved sleeping with Sir Hoppy Bun Bunz and chuppering with his brother until they were scolded.

His kitchen, where he spent most of his waking hours was where he called all the shots. Arjun called him a cow, he could chew on a bite long enough to finish his Calvin & Hobbs. Arjun called him the king of change minds - I want shrimp, no quessedilla, no pasta - ofcourse he would say this after the meal was ready.

His Ma was his driver, cook, nurse, compaion, Cruella, and someone with whom he could be himself.

Our darling Amaey passed away on September 25 at 9:50pm.

His Memorial Service is on October 1, 4:00-7pm at Hakone Estate and Gardens

Hakone Gardens                                                       
21000 Big Basin Way        
Saratoga CA 95070
408 741-4994         


Anonymous said...

Oh Purvi - I am so so sad. You don't know me, but I've been quietly been on this journey with you, as did so many others, and hoping and praying that things go well. I am heartbroken. I usually can never put myself in anyone's shoes - but I have cried for you and your family these past couple of days. There are no words to say that will help or can express anything. I just want to say that Amaey seems such an amazing boy, and the tranquility in his face as he is going thru all these procedures put many adults to shame. I did not know all these other things about him that you have written so eloquently about. What a wonderful child! Hugs to you, and hoping you, Arjun and Apurva will have the strength to cope with this loss. If you are working on the kids/cancer cause, I would be more than happy to contribute in any way I can.

How did this happen? What happened from going home happily on Sept 12th to this on Sept 25th? Was it some infection?

- Abby.

Purvi Shah said...

Abby, thank you so much for your kind words. Once I can get myself to sit down and write, I will fill in the gaps from when we came home to when he passed away.
Right now we are very blessed to have family flown in from all over the world. Amaey touched a lot of lives and that love and warmth is with us.

Thank you for being on this ourney with us.

Anonymous said...

Purvi masi,

I have been reading your blogs every day since you told me about them. I have been amazed at just how strong all of you have been through all of this and it is truly inspiring. You are a special family with a bond like no other and I know the togetherness you three share will help you through this horrible time in your lives. I'm very sorry Bhavisha and I couldnt come over for the funeral but I know you have plenty of support there with you and we will be thinking of you all constantly.


Anonymous said...

I have read somewhere that death is a passing state from a grosser form of life to an existence that is much subtler. I'm sure that the love and faith flowing constantly between the four of you has made this passing an easier one for Amaey. There is so much about life that we do not understand. But faith and unconditional love can make it tolerable. My heart aches for all of you and from that come prayers for healing. Amaey exists forever within you because with so much love, it is hard to tell where one ends and the other begins. You don't know me personally but your attitude towards life has given me a lot to learn. Thank you for taking the time and courage during these difficult times to let us know about the passing of Amaey.

nutsforlattes said...

Dear Purvi,

I have been checking up on Amaey's Journey for a while now. I was thrilled to read that you guys finally got to go home after his long BMT hospitalization. I check the blog frequently, and when I open it I am always grateful not to see a new post since I know that no news is always good news...right? at least in the cancer world. Today however, my heart ached when I read your post. I'm so sorry to hear about Amaey's passing. I can imagine the sadness and emptiness that you are all feeling right now. Such a beautiful boy. Our thoughts are with you and your family.

Teagan's mom

Newlin said...

Dear Apurva and Purvi,
I know we haven't kepy in touch in a while, Apurva, but I heard the news and wanted to give you my deepest condolences and my thoughts are with your family.

Your friend,
Brian Newlin

Lisa Stone said...

Dear Purvi, Apurva and Arjun --

I am so so sorry...I don't even know what to write to you, except to share that your love for each other as a couple and as a family has always been an inspiration to me. I am heartbroken that Amaey is no longer here, and I am so glad he spent his all too brief years with such warm, loving, giving parents and an amazing brother in Arjun.


BK said...

Purvi, I just heard the news about Amaey today. I am so sorry. Please know that all of LLS hurts for you and your family and will continue the fight to find a cure. I plan to be there Saturday and give you the biggest hug possible. My thoughts and prayers are with you and your family in these difficult times. Bk

Chris King said...

Just heard this morning. I don't know what to say. So so sad.


Unknown said...

Dear Purvi, Apurva, & Arjun,
I am so shocked and deeply saddened to hear about Amaey. I remember being so impressed by him when I first met him at the Art show. Our hearts reach out to his loving big brother, and to his amazing parents. May you find peace, love, and support through this difficult time. We will continue to support TNT and run in memory of Amaey Shah.

- angela & kent

Anonymous said...

Dear Purvi
I've been following your blog for months now and praying with my son for Amaey, I told him that God listens to the voice of kids so even though he did not remember Amaey because we met few years ago through our common friend Carmen, he has been praying every morning for him. Today I told him that Amaey is in heaven and in peace. Our heart is broken, but I told him that we have to think about how amazing Amaey was and celebrate his life, and remember all the beautiful things and moments in his life, keep in our hearts his beautiful face and smile, learn from his strength and the extraordinary love that he gave in his life and support in anyway we can his legacy to help other kids and families. Just want to let you know that there is a lot of love and prayers going to your family in this moment. God bless you and your family with a lot of strength to go through this.

Anonymous said...

We heard the news and are in a bit of a disbelief at the turn of events. A child is the most precious treasure for parents. Having gone through the ups and downs with Amaey show how courageous the whole family has been. May you find the inner strength to transition through this difficult time.

-Jayesh & Bhavini

Renata said...

Amaey. And he just keeps taking us to amazing places... physical, mental and emotional ones. Yesterday was so hard. Yet so beautiful. A celebration filled with so much life through the words and tears and laughs and the incredible nature surrounding us. There was just so much love! Thank you Purvi, Apurva and Arjun for inviting us and so generously allowing us to once again be inspired by Amaey.

Anonymous said...

Hello Purvi, So sorry to hear about Amaey. I am lost for words...god bless him...may he find and hugs to you and your family.

Pooja's mom Sangita

Anonymous said...

Dear Purvi

Please accept my deep felt condolenses.
You don't know but I known about you through a common friend - Carmen. Also my daughter is a firs grader at Woodland.
You had a brave son who will be truly missed. Words cannot describe what your family must be going through. All we can do is pray that all of you find the strenght to cope with his loss. He was really blessed to have such a loving family. Thinking of all of you.

Sinem said...

Purvi you are in m mind ─░just wAnt U tok oe ebat ism here if you need a hand.

Anonymous said...

Dear Apurva, Purvi: I came to know about you through a colleague at work who mentioned to me about what happened to adorable Amaey. We too lost someone in our family recently and its too difficult to describe the pain, anguish, sadness, anger, helplessness in words... I wish that you both find all the strength to move on; celebrate Amaey's life by doing things we liked doing but try not to live in the will be painful for you and Arjun. God bless!

Susan Fong said...

There is nothing worse than losing a child. I pray that your family is surrounded by peace and love...

Nitesh Mehta said...

Dear Purvi, Apurva and Arjun,

I am so very sorry and cannot imagine what you guys must be going through. Know that Amaey will always be with you. I do not know why things happen the way they do. Our prayers will be for you and for darling Amaey and hope that God gives peace and strength to all of you.

Lots of love,

Emily O'Brien said...

Dear Purvi, Apurva and Arjun,

My heart just breaks for you all. I am holding you in my heart and prayers. Everyone at LLS is thinking of you.


Emily O'Brien

Anonymous said...

Oh Purvi & Apurva,
My heart hurts so much for you! This is Jyotsna (Sonu)...Mahendra Advani's little sister...I met you both at Samir Bhaiya's home in Bombay a couple decades ago. It's impossible to convey enough condolence for your immeasurable I send my deepest prayers for your peace. I read through each & every post of your journey through teary eyes and knotted throat...knowing fully well that it told a fraction of the tough, tough years you endured. Your darling Amaey was a very special human being...SO strong, SO beautiful. God takes the best for his own. Your incredible strength and attitude made his time easier, happier. Love.

Anonymous said...

I have been reading this blog for a while..following Amaeys journey and praying very hard every day.

My heart goes out to your family. I hope you find the strength you need to deal with this dark time in your life.

Many hugs from a stranger all the way in faraway India