Friday, June 10, 2011

Home, hospital, home and back again

Amaey was discharged on Tuesday. He was so happy to be able to go home and do things at his own pace. Wednesday was hard to contain him. He would not sit in one place at all, he composed some wonderful tunes on the piano and as soon as Arjun was back from school the two of them were off. I haven't heard so much chatter in my house in a while. They had so much to talk about, so much to share, so much to show each other.

They also had two very special visitors. Ashish stopped by and then Flavio stayed over. We hadn't seen Flavio in almost 4 years, it was a special treat. However we were worried because we haven't allowed visitors in the house. His counts were fine so we knew it was ok but we usually try and avoid having too many people over.

Thursday, Amaey had to go back to the clinic for a check-up and they ended up staying for the whole day. His platelets had dropped to 3... that is a dangerously low number. He got a platelet and blood transfusion. Arjun had graduation and dance at school so my sister and I were with him. When we got home at 10:30pm Apurva said Amaey had a fever, this meant taking him to ER. We waited however and kept checking his temperature and it went down so we decided to wait until the morning.

This morning I brought Amaey to the day hospital. Since he had a fever and his counts have gone down very low they need to do cultures and have started antibiotics on him. He gets benadryl because he is allergic to one of the drugs and he is falling asleep now. They don't have a room for us in 1 North so I have a feeling we will be in the day hospital for a while. They are saying that we will be here for 2 days for observation, I have no idea what their real plan is. He hasn't spiked a fever since last night but the chemo he just got is very strong so they are expecting his counts to sink low even furthermore.

I already came prepared with bags so we are ready for our stay.

No comments: