We are really thankful to everyone for helping with the donor drives and adding to the pool of donors. We would really like to thank Davina, Maureen, Helen, Purvi-Samir and Renu-Sunil for helping with the drives. I know there were many people involved and all the names are not coming to me at the moment. A special thank you to Ezra for sending Amaey a video a day. These videos mean a lot to us, for Amaey he does not understand what the fuss is about and we do not plan to explain.
We cannot thank Magda enough, thanks to her all the drives were expedited and who knows, Amaey's donor might be from one of those drives. We really cannot thank everyone enough. Without disturbing us and respecting eveeything we were going through, our friends took on this momentous task and spent several days and weeks in putting all the drives together.
Thank you to everyone for calling and stopping by and reaching out to us in several ways. We are going to get really busy now. I know we have not been talking and sharing a lot but let me be honest, it is really hard to do so. Over the past 2 months since Amaey relapsed, we have gone through an eternity of information and many life changing decisions, these are very hard to express and very hard to talk over the phone or skype. We are so tired sometimes that having a conversation or explaing what is going on feels like a chore.
If everything goes as planned, he will be admitted to the hospital on July 11 and will undergo his transplant on the 18th. He will have 4 days of radiation then 2 days of chemo and 1 day of rest followed by transplant.
The path ahead is long, hard, complicated, and full of risks but this is Amaey's only chance. This is the chance for a second life, for a fresh start. We don't know what lays ahead but we do know that we will never forget where we are coming from. It's been 6 years since Amaey was first diagnosed and he has been through many rounds of chemo, transfusions, procedures, and ICU visits.
The BMT journey is new and unlike anything he has gone through, we know he is a tough child and a fighter. We will be with him all the way, all the time and we will be waiting for him at the end of the tunnel and we pray that he will make it through.